Rare Disease Day 2025

Rare Disease Day is an annual international event to focus attention on rare diseases as a public health concern. It occurs on the last day of February. This year, Rare Disease day is on Friday, February 28th. 

In addition to supporting patients with hypophosphatasia, part of our mission is to look for synergies with other organizations to ensure that the needs of our patient community are met. Many issues are common among other rare diseases, such as insurance denials and access issues, which can be more effectively addressed coming together with other like-non-profits to amplify our voices.

Some of these groups we frequently partner with are listed below. Each one of them has their own unique campaign for Rare Disease Day. We encourage you to check them out and pick one of the campaigns that resonate most with you. Together we can join others to help amplify the public health issues we face as a rare community. Other suggestions on how to get involved can be found below.