Impact of muscular symptoms and/or pain on disease characteristics, disability, and quality of life in adult patients with hypophosphatasia: A cross-sectional analysis from the Global HPP Registry Margaret Robb November 22, 2023 0 Comments Print 🖨 PDF 📄 To read more please click on the link below. Read Article
Patients of the Month- Amy and Suzanne Print 🖨 PDF 📄 Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis… wpengine June 8, 2022 0 Comments
Disease characteristics, disability, and quality of life in adult HPP patients with muscular symptoms and pain without skeletal manifestations – a cross-sectional analysis from the Global HPP Registry Print 🖨 PDF 📄 To read more please click on the link below. Read Article Denise Goodbar June 14, 2022 0 Comments
Patient of the Month- Alison S. Print 🖨 PDF 📄 If you would like to donate to Soft Bones in honor of Alison, please click the button below! Donate Here Hi,… Margaret Robb May 1, 2025 0 Comments
Patient of the Month- Judith H. Print 🖨 PDF 📄 If you would like to make a donation to Soft Bones in honor of Judith, please click the button below! Donate… Denise Goodbar October 31, 2023 0 Comments
Living with HPP: Sherri P. Print 🖨 PDF 📄 My name is Sherri Palackdharry, I have Hypophosphatasia along with two of my daughters, Maya, 16 and Syreeta, 21. Our journey… Taralyn Naslonski November 6, 2020 0 Comments
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