Hypophosphatasia Presenting as a Chronic Diffuse Pain Syndrome with Extra-Articular Calcifications Margaret Robb August 15, 2024 0 Comments Print 🖨 PDF 📄 To read more please click on the link below. Read Article
Improvement in quality of life after asfotase alfa treatment in adults with pediatric-onset hypophosphatasia: data from 5 patient-reported outcome measures Print 🖨 PDF 📄 To read more please click on the link below. Read Article Margaret Robb August 15, 2024 0 Comments
Living with HPP: Sherri P. Print 🖨 PDF 📄 My name is Sherri Palackdharry, I have Hypophosphatasia along with two of my daughters, Maya, 16 and Syreeta, 21. Our journey… Taralyn Naslonski November 6, 2020 0 Comments
Patient of the Month- Carol K. Print 🖨 PDF 📄 If you would like to make a donation to Soft Bones in honor of Carol, please click the button below! Donate… Margaret Robb September 1, 2024 0 Comments
Isabella and Julia Print 🖨 PDF 📄 They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks… Taralyn Naslonski November 6, 2020 0 Comments
Patient of the Month- Peyton W. Print 🖨 PDF 📄 If you would like to make a donation to Soft Bones in honor of Peyton, please click the button below! Donate… Denise Goodbar August 25, 2023 0 Comments
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