Hypophosphatasia Externally-Led Patient Focused Drug Development Meeting

WRITTEN BY JULIA C. If you sat in a class with me, there are a few things you might notice right away. I talk a…
My name is Sherri Palackdharry, I have Hypophosphatasia along with two of my daughters, Maya, 16 and Syreeta, 21. Our journey began when Maya was…
If you would like to make a donation to Soft Bones in honor of Emily, please click the button below! Donate Here Hi, this is…
In the spring of 2020, I was officially diagnosed with Hypophosphatasia through genetic testing. In retrospect, the signs and symptoms have been evident since my…
If you would like to donate to Soft Bones in honor of Evie, please click the button below! Donate Here This story is written by…
Mail Address (P.O Box)
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
Organization
Programs
Community
Office Address (Location for meetings and events)
1719 NJ-10, Suite 315
Parsippany, NJ 07054
Disclaimer: This Website is owned by Soft Bones, Inc. All materials contained in this Website (the “Materials”) are either owned by or licensed to us and are protected by intellectual property and other laws. We retain all proprietary rights to the Materials. This Website is copyrighted. All rights are reserved. Except as expressly authorized by us, any use, copy, reproduction, display, performance, modification or retransmission of the Materials is strictly prohibited.
Responses