Growth and disease burden in children with hypophosphatasia

Margaret Robb December 12, 2023

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Categories: Scientific Publications, Scientific Publications (new)

Tags: body mass index, growth, height, hypophosphatasia, registry

Patients of the Month- Amy and Suzanne

Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…

wpengine June 8, 2022

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Living with HPP: Cami

My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…

Taralyn Naslonski November 6, 2020

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Patient of the Month- Cass S.

If you would like to make a donation to Soft Bones in honor of Cass, please click the button below! Donate Here Cass with her…

Margaret Robb December 30, 2023

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The Occurrence and Burden of Hypophosphatasia in an Ambulatory Care Endocrinology Practice

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Denise Goodbar July 16, 2021

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My Journey with HPP Began When I Was 16

My journey with HPP began when I was 16 but I just didn’t know it. My husband, Donnie and I have been together since we…

Taralyn Naslonski November 9, 2020

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The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

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