Growth and disease burden in children with hypophosphatasia Margaret Robb December 12, 2023 0 Comments To read more please click on the link below. Read Article
Patient of the Month- Alison S. If you would like to donate to Soft Bones in honor of Alison, please click the button below! Donate Here Hi, I’m Alison, and I’m… Margaret Robb May 1, 2025 0 Comments
Patients of the Month- Amy and Suzanne Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it… wpengine June 8, 2022 0 Comments
Patient of the Month- Amedie P. If you would like to donate to Soft Bones in honor of Amedie, please click the button below! Donate Here Hi!! My name is Amedie.… Margaret Robb April 1, 2025 0 Comments
Living with HPP: Cami My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18… Taralyn Naslonski November 6, 2020 0 Comments
Patient of the Month- Cass S. If you would like to make a donation to Soft Bones in honor of Cass, please click the button below! Donate Here Cass with her… Margaret Robb December 30, 2023 0 Comments
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