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Welcome! Please introduce yourself and read our rules for posting.
Hello Fellow HPPers!
Welcome to the Soft Bones HPP and Me Discussion Board. This space was designed to be a resource for patients and families living with HPP.
Please start by introducing yourself and your connection to HPP. This will allow other users to get to know you.
Also, by posting in this forum, you should read and agree to the following forum rules:
• Use your best judgment in posting material that is neither inappropriate nor harmful. Be mindful of others and respectful of differences of opinion.
• Moderators reserve the right to remove inappropriate posts. Specific examples of prohibited conduct include posting commentary, content, or images that are defamatory, pornographic, proprietary, harassing, libelous, or that can create a hostile environment.
• Medical advice should be posted with caution. Sharing a personal experience is different from offering advice and making a recommendation. Beware of posting hearsay. First-hand experiences are most reliable. If you have questions, feel free to ask.
• Information contained in this forum is confidential and is not to be published, posted, released or communicated outside of this group for any reason. If there are questions about what is considered confidential, hppandme@softbones.org -
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