Events

Attention all UK HPP members! Soft Bones is hosting an HPP AND ME Zoom Chat for all patients, caregivers, and families living in the UK!…

Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…

Rare Disease Day is just around the corner. Are you ready? This year, getting involved is easier than ever. Visit our Rare Disease Day page…

Calling all HPP members from Alaska, Idaho, Montana, Northern California, Oregon, or Washington?   Join Region Leads, Haley T. & Scarlett P., for a Zoom Chat…

Calling all HPP members from Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, or Tennessee?   Join Region Leads, Blynda K. and Tess O., for…

  Calling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on March 18th at 12…

Register for your spot today! Join us on March 18, 2026, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…

🚨 RSVP Needed for TAC Art Session 🚨    Calling all Teen Advisory Council members!   Join us on March 23rd at 8 PM Eastern…

Attention all UK HPP members! Ash F. and Meryl C. are hosting an HPP AND ME Zoom Chat for all patients, caregivers, and families living…

Gain a new perspective on navigating treatment with STRENSIQ!   Join Alexion, AstraZeneca on March 25th at 7 PM Eastern for a virtual meeting. Learn…

Register for your spot today! Join us on April 14th at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share…

Register for your spot today! Join us on April 16th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share…