Join Us for an In-Person Southeast Region Meeting – August 30, 2025
Calling all HPP members from Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, and Tennessee. Meet us in Kissimmee, FL! Join Southeast Region…
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Join Us for a Northeast Zoom Chat – September 8, 2025 at 7 PM Eastern
Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia? Join Northeast Region…
HPP AND ME Live Zoom Chat – September 23, 2025
OnlineRegister for your spot today! Join us on September 23, 2025, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
HPP Empowered: September 24, 2025 at 7:00 PM Eastern
OnlineHave you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…
17th Annual Golf Classic and 2nd Annual Pickleball Tournament- Register Now!
Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New JerseyRegister now for the 17th Annual Soft Bones Golf Classic and 2nd Annual Pickleball Classic, taking place on Monday, September 29, 2025, at the world-class…
2025 Cannonball 5K Run, Roll, or Stroll
OnlineIt’s almost time to Run, Roll, or Stroll! Registration for Soft Bones 4th Annual Cannonball 5K Run, Roll or Stroll is opening soon! From October…
Join Us for an In-Person Southwest Region Meeting – October 25, 2025
Calling all HPP families from Arizona, Hawaii, Nevada, New Mexico, Southern California, and Utah. Meet us in Tempe, AZ! Join Southwest Region Leads…