Calling all Teen Advisory Council (TAC) teens!   Did you know that in 2023, there were over 10.2 million influencers on Instagram? From fashion and…

Do you live in Alaska, Idaho, Montana, Northern California, Oregon, or Washington?   Join us in Grass Valley, CA!   Northwest Region Leads, Scarlett P.…

Gain a new perspective on treatment!   Join Alexion, AstraZeneca on June 10th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Attendees will…

Register for your spot today! Join us on June 19, 2025, at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…

Join us for our 2025 Soft Bones National Patient Meeting on July 18th–July 19th, 2025 in Williamsburg, VA. This important event will bring together HPP community members to…

Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…

Register for your spot today! Join us on July 29, 2025, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…

Do you live in Louisiana or Texas?   Join South Central Region Leads Amedie P., Cami R. and Cassandra S. for a Zoom Chat on…

Calling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on August 11th at 1 PM…

Gain a new perspective on treatment!   Join Alexion, AstraZeneca on August 20th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Attendees will…

Calling all HPP members from Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, and Tennessee.   Meet us in Kissimmee, FL!   Join Southeast Region…

Save the Date!   Join us for our largest fundraiser of the year on September 29th, 2025!   Date: Monday, September 29th, 2025.  Location: Somerset…