Rare Disease Day- Just Around the Corner!
Rare Disease Day is just around the corner. Are you ready? This year, getting involved is easier than ever. Visit our Rare Disease Day page…
11 events found.
Events
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Join Us for a Northwest Region Zoom Chat – March 2, 2026
Calling all HPP members from Alaska, Idaho, Montana, Northern California, Oregon, or Washington? Join Region Leads, Haley T. & Scarlett P., for a Zoom Chat…
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Join Us for an Southeast Region Zoom Chat – March 5, 2026
Calling all HPP members from Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, or Tennessee? Join Region Leads, Blynda K. and Tess O., for…
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New Patient Orientation Meeting – March 18, 2026 at 12 PM Eastern
OnlineCalling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on March 18th at 12…
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HPP AND ME Live Zoom Chat – March 18, 2026 at 8 PM Eastern
OnlineRegister for your spot today! Join us on March 18, 2026, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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TAC Meeting: Guided Art Session March 23, 2026 at 8 PM Eastern
Online🚨 RSVP Needed for TAC Art Session 🚨 Calling all Teen Advisory Council members! Join us on March 23rd at 8 PM Eastern…
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Join Us for a Northeast In-Person Meeting – April 25, 2026 at 11 AM Eastern
🎉 Registration is now open! Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island,…
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Join Us for a Northwest In-Person Region – May 17, 2026 at 11 AM Pacific Time
Registration is now open! 🎉 Do you live in Alaska, Idaho, Montana, Northern California, Oregon, or Washington? Join us in Penn Valley, CA!…
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2026 National Patient Meeting – Registration is Now Open!
Chattanoogan Hotel 1201 Broad St, Chattanooga, TNRegistration is now open for the 2026 National Patient Meeting, taking place in Chattanooga, TN. Join us on June 26-27 for an informative gathering where individuals…
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4th Annual Denim and Diamonds Fundraiser – Save the Date!
Harvest Hall at Alstede Farms 100 Rte 24, Chester, United StatesSave the Date for our 4th Annual Denim and Diamonds Fundraiser! The Soft Bones' Annual Denim and Diamonds fundraiser will be held later this…
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18th Annual Golf Classic and 3rd Annual Pickleball Tournament- SAVE THE DATE
Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New JerseySave the Date! ⛳ Get ready to tee it up or dink for a great cause! We’re excited to announce that the 18th Annual Soft…