Register for your spot today! Join us on September 23, 2025, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…

Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…

Registration for the 17th Annual Soft Bones Golf Classic and 2nd Annual Pickleball Classic is now closed. If you are attending golf or pickleball, below,…

Ready! Set! Go! Registration is now open for the 4th Annual Cannonball 5K Run, Roll or Stroll. From now until October 31st, challenge yourself and…

Gain a new perspective on treatment!   Join Alexion, AstraZeneca Rare Disease on October 23rd at 7:00 PM Eastern for a virtual meeting on STRENSIQ.…

Do you live in Illinois, Indiana, Iowa, Kentucky, Michigan, Minnesota, Ohio, West Virginia, or Wisconsin?   Join us in Madison, IN!   Join Midwest 1…

Calling all HPP families from Arizona, Hawaii, Nevada, New Mexico, Southern California, and Utah.   Meet us in Tempe, AZ!   Join Southwest Region Leads…

Do you live in Illinois, Indiana, Iowa, Minnesota, or Wisconsin?    Join us in Madison, WI!   Region Leads Gerald G. and Jan R. will…

We are getting ready for World HPP Day, recognized on October 30th. This is a time for the HPP community to come together and raise…

Register for your spot today! Join us on October 30, 2025, at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…