Join Us for a In-Person Central Region Meeting – November 16, 2025
Do you live in Arkansas, Colorado, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, South Dakota, or Wyoming? Join us in Denver, CO! Soft Bones’s Region Lead,…
12 events found.
Events
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Dave and Buster's 2000 S Colorado Blvd, Denver, CO, United States
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Teen Advisory Council Event – Resilience
OnlineCalling all Teen Advisory Council (TAC) teens! We are excited to have Seth Rotberg, a nationally recognized patient advocate, TEDx speaker, and healthcare leader, as our guest…
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STRENSIQ Perspectives – December 9, 2025
OnlineGain a new perspective on navigating treatment with STRENSIQ! Join Alexion, AstraZeneca on December 9th at 7:00 PM Eastern for a virtual meeting. Learn…
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HPP AND ME Live Zoom Chat – December 11 at 1 PM Eastern
OnlineRegister for your spot today! Join us on December 11, 2025, at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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HPP AND ME Live Zoom Chat – January 15, 2026 at 8 PM
OnlineRegister for your spot today! Join us on January 15, 2026, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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HPP AND ME UK Live Zoom Chat – January 21, 2026
OnlineAttention all UK HPP members! Soft Bones is hosting an HPP AND ME Zoom Chat for all patients, caregivers, and families living in the…
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Teen Advisory Council Event – Trivia Night
OnlineCalling all Teen Advisory Council (TAC) members! Mark your calendars for our first meeting of 2026, scheduled for Monday, February 9, 2026, at 8:00 PM.…
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HPP AND ME Live Zoom Chat – February 17, 2026 at 2 PM Eastern
OnlineRegister for your spot today! Join us on February 17, 2026, at 2 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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HPP AND ME Live Zoom Chat – February 19, 2026 at 8 PM Eastern
OnlineRegister for your spot today! Join us on February 19, 2026, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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HPP AND ME UK Live Zoom Chat – February 21, 2026
OnlineAttention all UK HPP members! Soft Bones is hosting an HPP AND ME Zoom Chat for all patients, caregivers, and families living in the UK!…
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HPP Empowered: February 26, 2026 at 7:00 PM Eastern
OnlineHave you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…
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Rare Disease Day- Just Around the Corner!
Rare Disease Day is just around the corner. Are you ready? This year, getting involved is easier than ever. Visit our Rare Disease Day page…