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Appy Hour

Online

The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

HPP AND ME Live Zoom Chat

Online

Register for your spot today! Join us on November 21st at 2 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…

STRENSIQ Perspectives

Online

Gain a new perspective on treatment!   Join Alexion, AstraZeneca on December 3rd  at 7:00 PM Eastern for a virtual meeting. Learn how to navigate…

New Patient Orientation Meeting

Online

Calling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on December 4th at 8 PM…

Appy Hour

Online

The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

HPP AND ME Live Zoom Chat

Online

Register for your spot today! Join us on December 17th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…

3rd Annual Denim and Diamonds Fundraiser – SAVE THE DATE

Harvest Hall at Alstede Farms 100 Rte 24, Chester, United States

Save the Date!   Join us for our 3rd Annual Soft Bones Denim and Diamonds fundraiser at Harvest Hall in Chester, NJ.   Date: Saturday,…

2025 National Patient Meeting – SAVE THE DATE

Great Wolf Lodge (Williamsburg, VA) 549 E Rochambeau Dr, Williamsburg, VA, United States

Save the Date!   Join us for the 2025 National Patient Meeting in Williamsburg, VA. This important event will bring together HPP community members to…