It’s time to Run, Roll, or Stroll! Registration for Soft Bones 3rd annual Cannonball 5K Run, Roll or Stroll is NOW LIVE! Now until October…

Do you live in Kentucky, Michigan, Ohio, or West Virginia?   Join Region Leads, Nichole Macknight and Sharon Talkington for a Midwest 2 Zoom Chat…

Do you live in Alabama, Georgia, Florida, Mississippi, North Carolina, South Carolina, or Tennessee?   Join Region Leads, Blynda Kellner and Scott Galvin, for a…

The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

Southwest Region Meet-Up Opportunity  Do you live in Arizona, Hawaii, Nevada, New Mexico, Southern California or Utah?   Join Region Leads, Sue Krug and Amy…

We are calling all HPP members near Indiana.   Join region lead Cindy R. for an in-person Cannonball 5K in Historic Downtown Madison, Indiana. Meet…

We are excited to share that our very own Deborah Fowler and Cindy Reasor will be featured on “Behind the Mystery of Hypophosphatasia”.   Behind…

Preview Changes (opens in a new tab) Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode…

Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia?   Join Region…

We are excited to share that our very own Deborah Fowler and Cindy Reasor will be featured on “Behind the Mystery of Hypophosphatasia”.   Behind…

Join the Canadian Consortium for Children's Bone Health (CCCBH) for a webinar on October 29, 2024, from 7:00 PM - 9:00 PM Eastern.   This…

Gain a new perspective on treatment!   Join Alexion, AstraZeneca on October 30th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Attendees will…