Appy Hour
OnlineThe myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…
12 events found.
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Midwest 1 Region Patient Meeting
Blackberry Trails Park 2535 Caliendo Cir, Montgomery, IL, United StatesMidwest 1 Region Meet-Up Opportunity Do you live in Illinois, Indiana, Iowa, Minnesota, or Wisconsin? Join Region Lead, Nicole Belting, on Saturday August 17,…
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HPP Empowered: August 20, 2024 at 7:00 PM (Eastern)
OnlineRegister Today For This Informative Webinar. Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their…
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Northeast Region Zoom Meeting and Chat
OnlineDo you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia? Join Region…
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HPP AND ME Live Zoom Chat
OnlineRegister for your spot today! Join us on August 29th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…
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Appy Hour
OnlineThe myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…
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HPP Empowered: September 19, 2024 at 7:00 PM ET
OnlineRegister Today For This Informative Webinar. Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their…
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Join us for the 16th Annual Golf Classic 2024 and 1st Annual Pickleball Classic
Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New JerseyJoin us for our 16th Annual Soft Bones Golf Classic to be held on Monday, September 23rd, 2024. This annual fundraiser supports Roger's grandson Cannon…
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HPP AND ME Live Zoom Chat
OnlineRegister for your spot today! Join us on September 24th at 3 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…
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HPP Empowered: September 28, 2024 at 1:00 PM ET
Mitchell's Steakhouse 1408 Polaris Pkwy, Columbus, OHRegister Today For This Informative Webinar. Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host a…
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2024 Cannonball 5K Run, Roll, or Stroll
OnlineIt’s time to Run, Roll, or Stroll! Registration for Soft Bones 3rd annual Cannonball 5K Run, Roll or Stroll is NOW LIVE! Now until October…
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Midwest 2 Region Zoom Meeting and Chat
OnlineDo you live in Kentucky, Michigan, Ohio, or West Virginia? Join Region Leads, Nichole Macknight and Sharon Talkington for a Midwest 2 Zoom Chat…