The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

Midwest 1 Region Meet-Up Opportunity  Do you live in Illinois, Indiana, Iowa, Minnesota, or Wisconsin?   Join Region Lead, Nicole Belting, on Saturday August 17,…

Register Today For This Informative Webinar. Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their…

Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia?    Join Region…

Register for your spot today! Join us on August 29th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…

The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

Register Today For This Informative Webinar. Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their…

Join us for our 16th Annual Soft Bones Golf Classic to be held on Monday, September 23rd, 2024. This annual fundraiser supports Roger's grandson Cannon…

Register for your spot today! Join us on September 24th at 3 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…

Register Today For This Informative Webinar. Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host a…

It’s time to Run, Roll, or Stroll! Registration for Soft Bones 3rd annual Cannonball 5K Run, Roll or Stroll is NOW OPEN! From September 29,…