Events

Register for your spot today! Join us on October 30, 2025, at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…

Register for your spot today! Join us on November 13, 2025, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…

Do you live in Arkansas, Colorado, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, South Dakota, or Wyoming? Join us in Denver, CO! Soft Bones’s Region Lead,…

Calling all Teen Advisory Council (TAC) teens! We are excited to have Seth Rotberg, a nationally recognized patient advocate, TEDx speaker, and healthcare leader, as our guest…

Gain a new perspective on navigating treatment with STRENSIQ!   Join Alexion, AstraZeneca on December 9th at 7:00 PM Eastern for a virtual meeting. Learn…

Register for your spot today! Join us on December 11, 2025, at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…

Register for your spot today! Join us on January 15, 2026, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…

Attention all UK HPP members!   Soft Bones is hosting an HPP AND ME Zoom Chat for all patients, caregivers, and families living in the…

Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…

Save the Date! The countdown begins! We’re thrilled to announce the 2026 National Patient Meeting is in 🥁🥁🥁 Chattanooga, TN! Date: June 26-27, 2026 Location:…

Save the Date! ⛳ Get ready to tee it up or dink for a great cause! We’re excited to announce that the 18th Annual Soft…