HPP Empowered: February 26, 2026 at 7:00 PM Eastern
Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…
12 events found.
Events
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Rare Disease Day- Just Around the Corner!
Rare Disease Day is just around the corner. Are you ready? This year, getting involved is easier than ever. Visit our Rare Disease Day page…
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Join Us for a Northwest Region Zoom Chat – March 2, 2026
Calling all HPP members from Alaska, Idaho, Montana, Northern California, Oregon, or Washington? Join Region Leads, Haley T. & Scarlett P., for a Zoom Chat…
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Join Us for an Southeast Region Zoom Chat – March 5, 2026
Calling all HPP members from Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, or Tennessee? Join Region Leads, Blynda K. and Tess O., for…
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New Patient Orientation Meeting – March 18, 2026 at 12 PM Eastern
OnlineCalling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on March 18th at 12…
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HPP AND ME Live Zoom Chat – March 18, 2026 at 8 PM Eastern
OnlineRegister for your spot today! Join us on March 18, 2026, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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TAC Meeting: Guided Art Session March 23, 2026 at 8 PM Eastern
Online🚨 RSVP Needed for TAC Art Session 🚨 Calling all Teen Advisory Council members! Join us on March 23rd at 8 PM Eastern…
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HPP AND ME UK Live Zoom Chat – March 24, 2026
OnlineAttention all UK HPP members! Ash F. and Meryl C. are hosting an HPP AND ME Zoom Chat for all patients, caregivers, and families living…
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STRENSIQ Perspectives – March 25, 2026
OnlineGain a new perspective on navigating treatment with STRENSIQ! Join Alexion, AstraZeneca on March 25th at 7 PM Eastern for a virtual meeting. Learn…
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HPP AND ME Live Zoom Chat – April 14th at 1 PM Eastern
OnlineRegister for your spot today! Join us on April 14th at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share…
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HPP AND ME Live Zoom Chat – April 16th at 8 PM Eastern
OnlineRegister for your spot today! Join us on April 16th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share…
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Join Us for a Northeast In-Person Meeting – April 25, 2026 at 11 AM Eastern
🎉 Registration is now open! Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island,…