Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…

We are one month away from Rare Disease Day! Rare disease affects 1 in 10 Americans. Did you know many great organizations are supporting those…

Come celebrate Rare Disease Day and Show Your Stripes with us at our Virtual Rare Disease Day HPP Zoom Chat! Join us on February 28,…

Gain a new perspective on treatment!   Join Alexion, AstraZeneca on March 11th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Attendees will…

Register for your spot today! Join us on March 25, 2025, EDT for an HPP AND ME Zoom Chat. Connect with others and share your experiences…

Calling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on April 14th at 8 PM…

Do you live in Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, or Tennessee? Join us in Nashville, TN! Southeast Region Leads, Blynda K., Scott…

Save the Date!   Join us for our 3rd Annual Soft Bones Denim and Diamonds fundraiser at Harvest Hall in Chester, NJ.   Date: Saturday,…

Join us for our 2025 Soft Bones National Patient Meeting on July 18th–July 19th, 2025 in Williamsburg, VA. This important event will bring together HPP community members to…

Save the Date!   Join us for our largest fundraiser of the year on September 29th, 2025!   Date: Monday, September 29th, 2025.  Location: Somerset…