HPP AND ME Live Zoom Chat – November 13 at 8PM Eastern
Register for your spot today! Join us on November 13, 2025, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
12 events found.
Events
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Online
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Join Us for a In-Person Central Region Meeting – November 16, 2025
Dave and Buster's 2000 S Colorado Blvd, Denver, CO, United StatesDo you live in Arkansas, Colorado, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, South Dakota, or Wyoming? Join us in Denver, CO! Soft Bones’s Region Lead,…
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Teen Advisory Council Event – Resilience
OnlineCalling all Teen Advisory Council (TAC) teens! We are excited to have Seth Rotberg, a nationally recognized patient advocate, TEDx speaker, and healthcare leader, as our guest…
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STRENSIQ Perspectives – December 9, 2025
OnlineGain a new perspective on navigating treatment with STRENSIQ! Join Alexion, AstraZeneca on December 9th at 7:00 PM Eastern for a virtual meeting. Learn…
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HPP AND ME Live Zoom Chat – December 11 at 1 PM Eastern
OnlineRegister for your spot today! Join us on December 11, 2025, at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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HPP AND ME Live Zoom Chat – January 15, 2026 at 8 PM
OnlineRegister for your spot today! Join us on January 15, 2026, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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HPP AND ME UK Live Zoom Chat – January 21, 2026
OnlineAttention all UK HPP members! Soft Bones is hosting an HPP AND ME Zoom Chat for all patients, caregivers, and families living in the…
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Teen Advisory Council Event – Trivia Night
OnlineCalling all Teen Advisory Council (TAC) members! Mark your calendars for our first meeting of 2026, scheduled for Monday, February 9, 2026, at 8:00 PM.…
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HPP AND ME Live Zoom Chat – February 17, 2026 at 2 PM Eastern
OnlineRegister for your spot today! Join us on February 17, 2026, at 2 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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HPP AND ME Live Zoom Chat – February 19, 2026 at 8 PM Eastern
OnlineRegister for your spot today! Join us on February 19, 2026, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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HPP Empowered: February 26, 2026 at 7:00 PM Eastern
OnlineHave you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…
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Rare Disease Day- Less Than One Month Away!
We are less than one month away from Rare Disease Day, February 28th! Rare diseases affect 1 in 10 Americans, and 72% of them are…