New Patient Orientation Meeting – April 14, 2025
OnlineCalling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on April 14th at 8 PM…
12 events found.
HPP Empowered: April 16, 2025 at 7:00 PM Eastern
OnlineHave you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…
Southwest Region Zoom Meeting and Chat – April 17, 2025
OnlineDo you live in Arizona, Hawaii, Nevada, New Mexico, Southern California, or Utah? Join Region Leads Amy B., Sue K., and Adam W. for…
HPP AND ME Live Zoom Chat – April 24, 2025
OnlineRegister for your spot today! Join us on April 24, 2025, 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…
Southeast Region Zoom Meeting and Chat – April 26, 2025
OnlineDo you live in Alabama, Georgia, Florida, Mississippi, North Carolina, South Carolina, or Tennessee? Join Region Leads Blynda K., Scott G., and Tess O.,…
Join Us for an In-Person Midwest 1 Region Meeting – April 27, 2025
Do you live in Illinois, Indiana, Iowa, Minnesota, or Wisconsin? Join Midwest 1 Region Lead, Jan R. for a luncheon on Sunday, April 27, 2025,…
Join Us for a Northwest Region Zoom Chat – May 8, 2025
Do you live in Alaska, Idaho, Montana, Northern California, Oregon, or Washington? Join Region Leads Scarlett P. and Hayley T. for a Zoom Chat…
Join Us for an In-Person Southeast Region Meeting – May 10, 2025
Do you live in Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, or Tennessee? Join us in Nashville, TN! Southeast Region Leads, Blynda…
3rd Annual Denim and Diamonds Fundraiser – REGISTRATION IS NOW OPEN
Harvest Hall at Alstede Farms 100 Rte 24, Chester, United StatesRegistration for the 3rd Annual Denim and Diamonds is now open! Get your cowboy boots and dance for a great cause. There will…
HPP AND ME Live Zoom Chat – May 20, 2025
OnlineRegister for your spot today! Join us on May 20, 2025, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
Join Us for an In-Person Midwest 1 Region Meeting – May 25, 2025
Do you live in Illinois, Indiana, Iowa, Minnesota, or Wisconsin? Join us in Maple Grove/Anoka, MN! Join Region Lead, Jan R. for a…
Teen Advisory Council Event – Are you being influenced or are you an influencer?
OnlineCalling all Teen Advisory Council (TAC) teens! Did you know that in 2023, there were over 10.2 million influencers on Instagram? From fashion and…