Teen Advisory Council Event – Resilience
Calling all Teen Advisory Council (TAC) teens! We are excited to have Seth Rotberg, a nationally recognized patient advocate, TEDx speaker, and healthcare leader, as our guest…
8 events found.
Events
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STRENSIQ Perspectives – December 9, 2025
OnlineGain a new perspective on navigating treatment with STRENSIQ! Join Alexion, AstraZeneca on December 9th at 7:00 PM Eastern for a virtual meeting. Learn…
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HPP AND ME Live Zoom Chat – December 11 at 1 PM Eastern
OnlineRegister for your spot today! Join us on December 11, 2025, at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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HPP AND ME Live Zoom Chat – January 15, 2026 at 8 PM
OnlineRegister for your spot today! Join us on January 15, 2026, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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HPP AND ME UK Live Zoom Chat – January 21, 2026
OnlineAttention all UK HPP members! Soft Bones is hosting an HPP AND ME Zoom Chat for all patients, caregivers, and families living in the…
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HPP Empowered: February 26, 2026 at 7:00 PM Eastern
OnlineHave you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…
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2026 National Patient Meeting – Registration is Now Open!
Chattanoogan Hotel 1201 Broad St, Chattanooga, TNRegistration is now open for the 2026 National Patient Meeting, taking place in Chattanooga, TN. Join us on June 26-27 for an informative gathering where individuals…
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18th Annual Golf Classic and 3rd Annual Pickleball Tournament- SAVE THE DATE
Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New JerseySave the Date! ⛳ Get ready to tee it up or dink for a great cause! We’re excited to announce that the 18th Annual Soft…