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HPP Empowered: September 28, 2024 at 1:00 PM ET

Mitchell's Steakhouse 1408 Polaris Pkwy, Columbus, OH

Register Today For This Informative Webinar. Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host a…

2024 Cannonball 5K Run, Roll, or Stroll

Online

It’s time to Run, Roll, or Stroll! Registration for Soft Bones 3rd annual Cannonball 5K Run, Roll or Stroll is NOW LIVE! Now until October…

Midwest 2 Region Zoom Meeting and Chat

Online

Do you live in Kentucky, Michigan, Ohio, or West Virginia?   Join Region Leads, Nichole Macknight and Sharon Talkington for a Midwest 2 Zoom Chat…

Southeast Region Zoom Meeting and Chat

Online

Do you live in Alabama, Georgia, Florida, Mississippi, North Carolina, South Carolina, or Tennessee?   Join Region Leads, Blynda Kellner and Scott Galvin, for a…

Appy Hour

Online

The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

Southwest Region Meeting

Buca di Beppo Mesa 1730 South Val Vista Drive, AZ, United States

Southwest Region Meet-Up Opportunity  Do you live in Arizona, Hawaii, Nevada, New Mexico, Southern California or Utah?   Join Region Leads, Sue Krug and Amy…

Indiana In-Person Cannonball 5K Run, Roll, or Stroll Meet-Up

Hargan-Matthews Park 101 E Vaughn Dr., Madison, United States

We are calling all HPP members near Indiana.   Join region lead Cindy R. for an in-person Cannonball 5K in Historic Downtown Madison, Indiana. Meet…

Behind the Mystery of Hypophosphatasia

Online

We are excited to share that our very own Deborah Fowler and Cindy Reasor will be featured on “Behind the Mystery of Hypophosphatasia”.   Behind…

Join Us for an In-Person Northeast Region Meeting

Soft Bones Headquarters 1719 NJ-10, Parsippany, United States

Preview Changes (opens in a new tab) Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode…

Northeast Region In-Person Cannonball 5K Run, Roll, or Stroll Meet-Up

9-11 Memorial Trail Parking 11 Tabor Road, Morris Plains, NJ, United States

Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia?   Join Region…

Behind the Mystery of Hypophosphatasia

Online

We are excited to share that our very own Deborah Fowler and Cindy Reasor will be featured on “Behind the Mystery of Hypophosphatasia”.   Behind…