Join us for our 16th Annual Soft Bones Golf Classic to be held on Monday, September 23rd, 2024. This annual fundraiser supports Roger's grandson Cannon…

Register for your spot today! Join us on September 24th at 3 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…

Register Today For This Informative Webinar. Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host a…

It’s time to Run, Roll, or Stroll! Registration for Soft Bones 3rd annual Cannonball 5K Run, Roll or Stroll is NOW OPEN! From September 29,…

Do you live in Kentucky, Michigan, Ohio, or West Virginia?   Join Region Leads, Nichole Macknight and Sharon Talkington for a Midwest 2 Zoom Chat…

Do you live in Alabama, Georgia, Florida, Mississippi, North Carolina, South Carolina, or Tennessee?   Join Region Leads, Blynda Kellner and Scott Galvin, for a…

The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

Southwest Region Meet-Up Opportunity  Do you live in Arizona, Hawaii, Nevada, New Mexico, Southern California or Utah?   Join Region Leads, Sue Krug and Amy…

Registration is now open for the Northeast in-person meeting on October 26, 2024.   Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New…