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  • 2023 Cannonball 5k Run, Roll, or Stroll

    Online

    It’s time to Run, Roll or Stroll! Registration for Soft Bones second annual Cannonball 5k Run, Roll or Stroll is open NOW! Register with the…

  • World HPP Day

    Phoenix, AZ

    This year we come together to make some noise about HPP! Let's share our stories to raise awareness now and change the future of HPP.

  • HPP AND ME Live Zoom Chat

    Online

    Join the HPP community in an HPP AND ME live chat on Monday, October 30th, 2023 at 8:00 p.m. EDT. Meet the faces behind the…

  • Northwest Region Patient Meeting

    Terun Pizzaria 448 California Ave, Palo Alto, CA, United States

    Join Soft Bones' Denise Goodbar for a Northwest Region luncheon on Thursday, November 9th, 2023 from 12-2PM at Terun Pizzeria at 448 California Ave, Palo…

  • Unmask HPP Webinar: Living with HPP

    Online

    Register Today For This Informative Webinar. Presenter: Laura Cross, MS, CGC Are you navigating an HPP (hypophosphatasia) diagnosis?  Whether you're new to HPP or a…

  • Unmask HPP Webinar: Caring for Someone with HPP

    Online

    Register Today For This Informative Webinar. Presenter: Freda Hannafon, FNP-C, Endocrinology Are you navigating an HPP (hypophosphatasia) diagnosis?  Whether you're new to HPP or a…

  • HPP AND ME Live Zoom Chat

    Online

    Register for your spot today! Join the HPP community in an HPP AND ME live chat on January 8, 2024, at 1:00 p.m. EDT. Meet…

  • HPP AND ME Zoom Tutorial

    Online

    Register for your spot today! Soft Bones will be hosting an HPP AND ME Zoom tutorial on January 8, 2024, at 8:00 pm EDT. Learn…

  • Central Region Patient Meeting – Save the Date

    Old School Bagel - Piedmont 12000 Northwest Expy Suite A, Yukon, OK

    Central Region Meet-Up Opportunity  Join Central Region Leads, Nellie Sanders and Casey Anne Johnson, as they warmly invite you to connect, come together, understand the…

  • HPP AND ME Live Zoom Chat

    Online

    Register for your spot today! Join the HPP community in an HPP AND ME live chat on February 20, 2024, at 8 pm EST. Meet…

  • South Central Region Patient Meeting

    Texas A&M College Station, TX

        South Central Region Meet-Up Opportunity  Please join Region Leads Cami Rush and Cassandra Self for a South Central meeting on Saturday, March 2,…