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  • HPP TeleECHO: ALPL Variant Database

    Online

    Join our HPP TeleECHO: ALPL Variant Database on March 10th, at 12PM EST, presented by Dr. Wolfgang Hogler. For more information, contact us at ECHO@SoftBones.org…

  • HPP AND ME Zoom Meeting

    Online

      Join the HPP AND ME community members in a live chat via  Zoom on Wednesday, April 12th, at 8:00 p.m. EDT! Come together and…

  • Unmask HPP Webinar: Genetics and HPP

    Online

    Register Today For This Informative Webinar. Presenter:  Dmitriy Niyazov, MD Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient…

  • HPP AND ME Live Zoom Chat

    Online

      Join the HPP community in an HPP AND ME live chat on May 4, 2023, at 3:00 p.m. EDT. Meet the faces behind the…

  • HPP AND ME Zoom Tutorial

    Online

    Soft Bones will be hosting a HPP AND ME Zoom tutorial on Tuesday, May 9th, at 8:00 p.m. EDT. Learn more about the HPP community,…

  • Unmask HPP Webinar: Living with HPP

    Online

    Register Today For This Informative Webinar. Presenter:  Jacqui Kernaghan, PA- C, Preventative Medicine Are you navigating an HPP diagnosis? Whether you’re new to HPP or…

  • Teen Advisory Council (TAC) Trivia Night

    Online

    Join in the fun in our virtual Trivia Night Tuesday, May 23, 2023, from 7 pm to 8:30 pm EST. The Teen Advisory Council (TAC)…

  • Region Lead Bi-Monthly Call

    Online

    FOR SOFT BONES REGION LEADS ONLY: Join the Region Lead bi- monthly call on Thursday June 8th from 7-8 pm EST. For questions reach out…

  • HPP AND ME Live Zoom Chat

    Online

    Join the HPP community in an HPP AND ME live chat on June 8th, 2023 at 8:00 p.m. EDT. Meet the faces behind the names,…