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Rare Disease Day 2023

Online

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. SHARE YOUR COLOURS

HPP AND ME Tutorial #1

Online

Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 1: (1:00 p.m.)  https://us06web.zoom.us/meeting/register/tZUvfuyhqT4sHtVfikHsMID5seFKxt_6sPG5  

HPP AND ME Tutorial #2

Online

  Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 2: (7:00 p.m.) https://us06web.zoom.us/meeting/register/tZwof-ugqzoiHdygHj7Wi4DKOmB9PADf8Q5F  

HPP TeleECHO: ALPL Variant Database

Online

Join our HPP TeleECHO: ALPL Variant Database on March 10th, at 12PM EST, presented by Dr. Wolfgang Hogler. For more information, contact us at ECHO@SoftBones.org…

HPP AND ME Zoom Meeting

Online

  Join the HPP AND ME community members in a live chat via  Zoom on Wednesday, April 12th, at 8:00 p.m. EDT! Come together and…

Unmask HPP Webinar: Genetics and HPP

Online

Register Today For This Informative Webinar. Presenter:  Dmitriy Niyazov, MD Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient…

HPP AND ME Live Zoom Chat

Online

  Join the HPP community in an HPP AND ME live chat on May 4, 2023, at 3:00 p.m. EDT. Meet the faces behind the…

HPP AND ME Zoom Tutorial

Online

Soft Bones will be hosting a HPP AND ME Zoom tutorial on Tuesday, May 9th, at 8:00 p.m. EDT. Learn more about the HPP community,…

Unmask HPP Webinar: Living with HPP

Online

Register Today For This Informative Webinar. Presenter:  Jacqui Kernaghan, PA- C, Preventative Medicine Are you navigating an HPP diagnosis? Whether you’re new to HPP or…

Teen Advisory Council (TAC) Trivia Night

Online

Join in the fun in our virtual Trivia Night Tuesday, May 23, 2023, from 7 pm to 8:30 pm EST. The Teen Advisory Council (TAC)…