HPP TeleECHO: HPP Genetic Nosology and Clinical Relevance
OnlineJoin our HPP TeleECHO: HPP TeleECHO: HPP Genetic Nosology and Clinical Relevance on February 8th at 12PM EST, presented by Eric Rush, MD. For more information,…
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National Patient Meeting 2023
Phoenix, ArizonaJoin us for our 2023 National Patient Meeting happening on February 17-18 in Phoenix, Arizona! This important event will bring the HPP community together to…
Rare Disease Day 2023
OnlineRaising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. SHARE YOUR COLOURS
HPP AND ME Tutorial #1
OnlineJoin Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 1: (1:00 p.m.) Â https://us06web.zoom.us/meeting/register/tZUvfuyhqT4sHtVfikHsMID5seFKxt_6sPG5
HPP AND ME Tutorial #2
OnlineJoin Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 2: (7:00 p.m.) https://us06web.zoom.us/meeting/register/tZwof-ugqzoiHdygHj7Wi4DKOmB9PADf8Q5F
HPP TeleECHO: ALPL Variant Database
OnlineJoin our HPP TeleECHO: ALPL Variant Database on March 10th, at 12PM EST, presented by Dr. Wolfgang Hogler. For more information, contact us at ECHO@SoftBones.org…
HPP AND ME Zoom Meeting
OnlineJoin the HPP AND ME community members in a live chat via Zoom on Wednesday, April 12th, at 8:00 p.m. EDT! Come together and…
Unmask HPP Webinar: Genetics and HPP
OnlineRegister Today For This Informative Webinar. Presenter: Dmitriy Niyazov, MD Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient…
Soft Bones Teen Advisory Council (TAC) Trivia Night
OnlineJoin in the fun of our virtual Trivia Night, Friday April 21, 2023 7pm to 8:30pm EST. The Teen Advisory Council (TAC) invites you…
HPP AND ME Live Zoom Chat
OnlineJoin the HPP community in an HPP AND ME live chat on May 4, 2023, at 3:00 p.m. EDT. Meet the faces behind the…
HPP AND ME Zoom Tutorial
OnlineSoft Bones will be hosting a HPP AND ME Zoom tutorial on Tuesday, May 9th, at 8:00 p.m. EDT. Learn more about the HPP community,…
Unmask HPP Webinar: Living with HPP
OnlineRegister Today For This Informative Webinar. Presenter: Jacqui Kernaghan, PA- C, Preventative Medicine Are you navigating an HPP diagnosis? Whether you’re new to HPP or…
