Cross-sectional analysis: clinical presentation of children with persistently low ALP levels Denise Goodbar September 1, 2021 0 Comments Print 🖨 PDF 📄To read more please click on the link below. Read Article
Impact of muscular symptoms and/or pain on disease characteristics, disability, and quality of life in adult patients with hypophosphatasia: A cross-sectional analysis from the Global HPP Registry Print 🖨 PDF 📄To read more please click on the link below. Read Article Margaret Robb November 22, 2023 0 Comments
Patient of the Month- Alison S. Print 🖨 PDF 📄If you would like to donate to Soft Bones in honor of Alison, please click the button below! Donate Here Hi, I’m… Margaret Robb May 1, 2025 0 Comments
Disease characteristics, disability, and quality of life in adult HPP patients with muscular symptoms and pain without skeletal manifestations – a cross-sectional analysis from the Global HPP Registry Print 🖨 PDF 📄To read more please click on the link below. Read Article Denise Goodbar June 14, 2022 0 Comments
Patient of the Month- Nellie S. Print 🖨 PDF 📄Hi, I am Nellie and this is my HPP story: I absolutely love spending time with my family. My husband and I… wpengine August 4, 2022 0 Comments
Patient of the Month- Denise K. Print 🖨 PDF 📄 Hi! I’m Denise and I was diagnosed with childhood-onset hypophosphatasia (HPP) at age 50. As a child, I remember that all… Emma September 1, 2022 0 Comments
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