Category: Webinars
Watch the HPP Webinars
HPP: Assembling and Coordinating Your Personal Care Team Webinar
On October 30, 2019 Soft Bones held a webinar featuring Drs. Jill Simmons and Kathryn Dahir from Vanderbilt University Medical Center as they explain how…
The Emotional Effects of Living with a Chronic Rare Disease
Adrianna Tuomi, a licensed clinical social worker and Soft Bones Community Member and Region Lead will be presenting a webinar on the psychological effects of…
HPP- A Clinical Overview
What is HPP? with Deborah Sittig, Founder and Caregiver of Son with HPP and Dr. Cheryl Rockman-Greenberg, MD, CM, FRCPC, FCCMG
HPP Genetics Boot Camp – Learning More About ALPL Gene Changes and HPP in Families
Presented by The Soft Bones Foundation. Do you have questions about your family’s diagnosis of Hypophosphatasia? Are you uncertain what the risk is for other…
The Role of Vitamin B6: Implications for Hypophosphatasia
Featuring Eric T. Rush, MD, FAAP, FACMG Clinical Geneticist Children’s Mercy Hosptial Associate Professor of Pediatrics UMKC School of Medicine