Jaycob’s Journey
Jaycob’s journey began April 24th, 2016. Jaycob was born 5 weeks early and spent 5 days in the NICU. Once born he had to have…
Category: HPP Stories
Living with HPP- Joann
This is me, Joann. Living with a rare disease. Hiding for years in my DNA. It snuck up on me in the prime of my…
My Life’s Beginning Chapters: Julia C.
WRITTEN BY JULIA C. If you sat in a class with me, there are a few things you might notice right away. I talk a…
Kamila’s Story
My name is Kamila. I come from the center of Poland, Lodz city. I am interested in personalism (pedagogy, sociology, psychology) and I love to…
Living with HPP- Kirsten
Two years ago, at the age of 49, I was diagnosed with hypophosphatasia. Married to my high school sweetheart and with two grown sons, nothing…
Living with HPP: Kristena
My name is Kristena and I am one of a 4 generation family that has HPP. I can say for myself this journey has been…
Laiken, Rowan and their Family’s HPP Journey
At fifteen weeks pregnant my husband and I decided to have an elective ultrasound performed for gender confirmation at our local OB/GYN office in Jamestown,…
Living with HPP: Larry M.
My HPP journey started after attending a conference in Phoenix, Arizona in 2017. I brought my son, Zane, who was diagnosed with HPP 19 years…
Living with HPP: Lisa’s Journey
Hello. My name is Lisa and I am 56 years old. I’ll start by saying I’m living a wonderful life. I did however live with…
Mei Mei’s Story
Not long ago, Becky R. and her husband adopted a little baby girl, Mei Mei, from China. When she was first adopted, doctors were worried…
