Evin’s Story
In December of 2016 our eleven year old son was diagnosed with Hypophosphatasia (HPP). I could not even say the name correctly at first, let…
Category: HPP Stories
Living with HPP: Susan B.
Hello! My name is Susan B. My husband, Robert, and I have one daughter, Olivia. She was diagnosed with HPP at age 2 (about 29…
Holly’s Story
I was 22 years old when you were born and had a kindergartner, your brother, as well. I knew something was going on with you,…
Heather R.’s HPP Journey
My name is Heather R. I am a 54 year old, white female, married with twin boys, age 24. I was adopted at 3 months…
Isabella and Julia
They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought…
Jaycob’s Journey
Jaycob’s journey began April 24th, 2016. Jaycob was born 5 weeks early and spent 5 days in the NICU. Once born he had to have…
Living with HPP- Joann
This is me, Joann. Living with a rare disease. Hiding for years in my DNA. It snuck up on me in the prime of my…
My Life’s Beginning Chapters: Julia C.
WRITTEN BY JULIA C. If you sat in a class with me, there are a few things you might notice right away. I talk a…
Kamila’s Story
My name is Kamila. I come from the center of Poland, Lodz city. I am interested in personalism (pedagogy, sociology, psychology) and I love to…
Living with HPP- Kirsten
Two years ago, at the age of 49, I was diagnosed with hypophosphatasia. Married to my high school sweetheart and with two grown sons, nothing…