Kamila’s Story
My name is Kamila. I come from the center of Poland, Lodz city. I am interested in personalism (pedagogy, sociology, psychology) and I love to…
Category: HPP Stories
Living with HPP- Kirsten
Two years ago, at the age of 49, I was diagnosed with hypophosphatasia. Married to my high school sweetheart and with two grown sons, nothing…
Living with HPP: Kristena
My name is Kristena and I am one of a 4 generation family that has HPP. I can say for myself this journey has been…
Laiken, Rowan and their Family’s HPP Journey
At fifteen weeks pregnant my husband and I decided to have an elective ultrasound performed for gender confirmation at our local OB/GYN office in Jamestown,…
Living with HPP: Larry M.
My HPP journey started after attending a conference in Phoenix, Arizona in 2017. I brought my son, Zane, who was diagnosed with HPP 19 years…
Living with HPP: Lisa’s Journey
Hello. My name is Lisa and I am 56 years old. I’ll start by saying I’m living a wonderful life. I did however live with…
Mei Mei’s Story
Not long ago, Becky R. and her husband adopted a little baby girl, Mei Mei, from China. When she was first adopted, doctors were worried…
Living with HPP: Pennie
I would guess my HPP journey must have started over 10 years ago, when I began having issues with multiple things. I started with what…
Ryan’s Story
We are all told to stay away from “Dr. Google”; however, in the case of our son’s diagnosis of Hypophosphatasia (HPP), we were glad that…
Soft Bones HPP Advocacy: It’s All About Family
Hello everyone, my name is Sharon T., and my husband Dave has hypophosphatasia (HPP). He and our family have paid a price in our HPP…
