Burden of Illness in Adults With Hypophosphatasia: Data From the Global Hypophosphatasia Patient Registry Denise Goodbar November 5, 2020 0 Comments Print 🖨 PDF 📄To read more please click on the link below. Read Article
Patient of the Month- Emily H. Print 🖨 PDF 📄If you would like to make a donation to Soft Bones in honor of Emily, please click the button below! Donate Here… Margaret Robb April 1, 2024 0 Comments
Patient of the Month- Cleo H. Print 🖨 PDF 📄If you would like to donate to Soft Bones in honor of Cleo, please click the button below! Donate Here When Cleo… Margaret Robb June 1, 2025 0 Comments
Impact of muscular symptoms and/or pain on disease characteristics, disability, and quality of life in adult patients with hypophosphatasia: A cross-sectional analysis from the Global HPP Registry Print 🖨 PDF 📄To read more please click on the link below. Read Article Margaret Robb November 22, 2023 0 Comments
New insights into the landscape of ALPL gene variants in patients with hypophosphatasia from the Global HPP Registry Print 🖨 PDF 📄To read more please click on the link below. Read Article Margaret Robb August 15, 2024 0 Comments
Patient of the Month- Alison S. Print 🖨 PDF 📄If you would like to donate to Soft Bones in honor of Alison, please click the button below! Donate Here Hi, I’m… Margaret Robb May 1, 2025 0 Comments
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