• About WordPress
    • WordPress.org
    • Documentation
    • Learn WordPress
    • Support
    • Feedback
  • Log In
  • Events
    • View Calendar
  • DONATE
  • Home Page
  • Printable HPP Resources
  • Patient Stories
  • Webinars
  • Podcasts
  • Emergency Preparedness
  • News
  • Scientific Publications
Soft Bones Logo
  • About Us
    • Contact Us
  • Newly Diagnosed?
    • Printable HPP Resources
  • Programs and Services
    • Patient Support
    • Youth and Teen
    • Physician Support
    • Patient Education
    • Policy and Partnerships
  • HPP Community
    • Rare Disease Day 2025
    • Bone Zone
    • HPP AND ME
    • Region Lead Program
    • Caregiver Corner
    • Meet Me Monday
    • Calendar of Events
  • Research
  • Soft Bones Store
  • Get Involved
    • Calendar of Events
    • Shop for a Cause
    • Ways to Donate
    • Volunteer
    Sign in
    • About Us
      • Contact Us
    • Newly Diagnosed?
      • Printable HPP Resources
    • Programs and Services
      • Patient Support
      • Youth and Teen
      • Physician Support
      • Patient Education
      • Policy and Partnerships
    • HPP Community
      • Rare Disease Day 2025
      • Bone Zone
      • HPP AND ME
      • Region Lead Program
      • Caregiver Corner
      • Meet Me Monday
      • Calendar of Events
    • Research
    • Soft Bones Store
    • Get Involved
      • Calendar of Events
      • Shop for a Cause
      • Ways to Donate
      • Volunteer

    Author: emma_richter

    Perinatal and Childhood HPP: Dr. Gottesman- (2022 Soft Bones Virtual Meeting)

    emma_richter January 10, 2023
    0 Comments

    HPP Overview: Dr. Gottesman- (2022 Soft Bones Virtual Meeting)

    emma_richter January 10, 2023
    0 Comments

    Hypophosphatasia Externally-Led Patient Focused Drug Development Meeting

    emma_richter January 10, 2023
    0 Comments

    Patient of the Month- Sharon M.

    My Journey with my Soft Bones: The only hint my parents had that something was wrong with me was my teeth. My baby teeth had…

    emma_richter January 3, 2023
    0 Comments

    Winter 2022 Newsletter

    To view the Newsletter please click the link below. View the Winter 2022 Newsletter

    emma_richter December 29, 2022
    0 Comments

    Leaky Gut Fact Sheet

    Please download and view this fact sheet with the link below. Download Fact Sheet

    emma_richter December 8, 2022
    0 Comments

    2022 Recipient of hypophosphatsia Research Grant Announcement- Nan Hatch, DMD, PhD

    To read more please click the link below. View Press Release

    emma_richter November 30, 2022
    0 Comments

    Patient of the Month- Rachel S. and Christine S.

    Hi Everyone,  Instead of Rachel and I (Christine) writing two separate stories, we thought that since our lives are so intertwined, it is best to…

    emma_richter November 30, 2022
    0 Comments

    2020 Recipient of hypophosphatsia Research Grant Announcement- Flavia Amadeu de Oliveira, PhD

    To read more please click the link below. View News Article

    emma_richter November 28, 2022
    0 Comments

    2019 Recipient of hypophosphatasia Research Grant Announcement- Dana Gaddy, PhD & Dobrawa Napierala, PhD

    To read more please click the link below.View News Article

    emma_richter November 27, 2022
    0 Comments
    Load More
    • Facebook
    • Instagram
    July 2025
    M T W T F S S
     123456
    78910111213
    14151617181920
    21222324252627
    28293031  
    « Jun    
    • Caregiver Corner
    • Childrens Resources
    • Emergency
    • Fact Sheets
    • HPP Stories
    • Meet Me Monday
    • News
    • Newsletters
    • Physicians
    • Physicians1
    • Physicians2
    • Podcasts
    • Scientific Publications
    • Scientific Publications (new)
    • Scientific Publications (old)
    • Soft Bones Publications
    • Translated Soft Bones Publications
    • Uncategorized
    • Webinars

    Mail Address (P.O Box)
    The US Hypophosphatasia Foundation
    141 Hawkins Place, #267
    Boonton, NJ 07005, USA.

    Organization

    • About Soft Bones
    • Fundraising
    • Soft Bones Store
    • Contact Us
    • About Soft Bones
    • Fundraising
    • Soft Bones Store
    • Contact Us

    Programs

    • Patient Education
    • Patient Support
    • Physician Education
    • Patient Education
    • Patient Support
    • Physician Education

    Community

    • Bone Zone
    • HPP AND ME
    • Get Involved
    • Calendar of Events
    • Bone Zone
    • HPP AND ME
    • Get Involved
    • Calendar of Events

    Office Address (Location for meetings and events)
    1719 NJ-10, Suite 315
    Parsippany, NJ 07054

    • Local: (973) 453-3093
    • Toll Free: (866) 827-9937
    • Contact Us
    Donate

    Follow Us on Social Media!

    Instagram Twitter Facebook Linkedin Youtube Spotify

    Disclaimer: This Website is owned by Soft Bones, Inc. All materials contained in this Website (the “Materials”) are either owned by or licensed to us and are protected by intellectual property and other laws. We retain all proprietary rights to the Materials. This Website is copyrighted. All rights are reserved. Except as expressly authorized by us, any use, copy, reproduction, display, performance, modification or retransmission of the Materials is strictly prohibited.