Growth and disease burden in children with hypophosphatasia
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Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…
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They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought…
If you would like to make a donation to Soft Bones in honor of Judith, please click the button below! Donate Here I started life…
Mail Address
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
Office Address
1719 NJ-10,
Parsippany, NJ 07054
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