Categories: Scientific Publications, Scientific Publications (new)
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Patients of the Month- Amy and Suzanne
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
Disease characteristics, disability, and quality of life in adult HPP patients with muscular symptoms and pain without skeletal manifestations – a cross-sectional analysis from the Global HPP Registry
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Patient of the Month- Judith H.
If you would like to make a donation to Soft Bones in honor of Judith, please click the button below! Donate Here I started life…
Living with HPP: Sherri P.
My name is Sherri Palackdharry, I have Hypophosphatasia along with two of my daughters, Maya, 16 and Syreeta, 21. Our journey began when Maya was…
Heather R.’s HPP Journey
My name is Heather R. I am a 54 year old, white female, married with twin boys, age 24. I was adopted at 3 months…
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