Improvement in quality of life after asfotase alfa treatment in adults with pediatric-onset hypophosphatasia: data from 5 patient-reported outcome measures

Margaret Robb August 15, 2024

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Categories: Scientific Publications, Scientific Publications (new)

Tags: asfotase alfa, hypophosphatasia, Patient-Reported Outcome Measures, Quality Of Life, Real-World Evidence

Patient of the Month- Cass S.

If you would like to make a donation to Soft Bones in honor of Cass, please click the button below! Donate Here Cass with her…

Margaret Robb December 30, 2023

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Patient of the Month- Judith H.

If you would like to make a donation to Soft Bones in honor of Judith, please click the button below! Donate Here I started life…

Denise Goodbar October 31, 2023

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Effects of asfotase alfa in adults with pediatric-onset hypophosphatasia over 24 months of treatment

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Margaret Robb November 22, 2023

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Deklyn’s Story

When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly be wrong with my child.…

Taralyn Naslonski November 6, 2020

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Deklyn’s Story

When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly be wrong with my child.…

Taralyn Naslonski November 6, 2020

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