Your DNA- A Brief Overview

My name is Kristena and I am one of a 4 generation family that has HPP. I can say for myself this journey has been…

This is me, Joann. Living with a rare disease. Hiding for years in my DNA. It snuck up on me in the prime of my…

Born in 1960 with broken bones and a large fontanel they knew something was wrong. By the age of 3 months and my failure to…

When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking myself questions like “Is it going to be a boy or a girl?”, “Am I going to be a good mother?”, “What am I going to name him/her?”. Then during …

When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking…