World HPP Day 2026 – Soft Bones

WE ARE HPP

World HPP Day | October 30

WE ARE HPP

World HPP Day | October 30

Hypophosphatasia may be rare, but it reaches beyond any one patient.
Surrounding every person living with HPP is a wider community of people working to understand it, support it and move knowledge forward.

This World HPP Day, we are bringing those people into view.

Patients. Caregivers. Families. Friends. Healthcare Providers. Researchers. Advocates. Partners. We Are HPP.

this year we join with patient groups from around the world. Introducing HPP united.

There is no single face of HPP.

There are all of us.

We are HPP

There is no single face of HPP.
There are all of us.

We are HPP

Throughout October, we invite the HPP community to help us show the people, relationships and experiences that make up this community.

Share knowledge that helps you understand the disease differently.
Give a shout-out to a medical professional who has helped you along the way.
Take a moment to recognize a researcher helping move HPP science forward.

Share a photograph.
Tell part of your story. Share the symptoms that led to the diagnosis. Three key symptoms. etc…
Recognize someone who has been part of your HPP experience.

Share knowledge that helps you understand the disease differently.
Give a shout-out to a medical professional who has helped you along the way.
Take a moment to recognize a researcher helping move HPP science forward.

Share a photograph.
Tell part of your story. Share the symptoms that led to the diagnosis. Three key symptoms. etc…
Recognize someone who has been part of your HPP experience.

Whether you live with HPP, love someone who does, care for people living with HPP, study the disease or help strengthen the HPP community, you are part of the story being told. Tag @SoftBonesHPP and use #WorldHPPDay and #WeAreHPP so we can help amplify it.

On October 30, we come together to make HPP more visible. Not only the disease, but the people, relationships and experiences that surround it.
Every person adds something to the picture. We Are HPP.

Introducing HPP United

HPP United is a global alliance of independent organizations and patient representatives working together to improve the lives of people affected by hypophosphatasia.

Profile Pictures

Update your social media profile picture to raise HPP awareness! Circular Profile Picture: Right-click to ‘save image as’ to your computer, or hold for 2 seconds to ‘save photo’ to mobile device.
World HPP Day Profile Frame: Fill out the form on this page, and you will receive your photo in the profile frame via email, Share and promote our #WorldHPPDay story.

Profile Pictures

World HPP Day Profile Frames

Show your support with a World HPP Day Profile Frame

File(Required)

Submit photos that you want put in the frame here. Up to 2 .PNGs and/or .JPGs may uploaded.

Drop files here or

Accepted file types: jpg, png, jpeg, heic, Max. file size: 50 MB, Max. files: 2.

Name(Required)

Input the first name(s) of the people in your photos. This will help to keep things organized.

Email(Required)

In order to receive your photo(s) in the frame, please provide your email so Alex can send them to you.

Printable World HPP Day Signs

We are HPP

Download and print the "Soft Bones, Stronger Spirit" visual. Snap a photo with the poster and share it on social media.

Shareable landscape "We are HPP"

World HPP Day

Download and print the "World HPP Day" visual. Snap a photo with the poster and share it on social media.

Shareable landscape "World HPP Day"

I Love Someone With HPP

Download and print the "I Love Someone With HPP" visual. Take a photo with the poster and share it on social media.

Shareable landscape "I Love Someone With HPP"

We are HPP FB/X Cover Photo

Download and update your FB and X cover photo on social media.

Shareable FB/X Cover Photo "We are HPP"

Zoom/Google
Meet Background

Update your Zoom or Google Meet background to raise HPP awareness! Click on the image below. Right-click to ‘save image as’ to your computer, or hold for 2 seconds to ‘save photo’ to mobile device. Upload to any video session. Together we can share and promote our #WorldHPPDay story.

Host a Fundraiser &
Post it to Social Media

You can even start your very own fundraiser and share it on Instagram, Facebook, Tik Tok, etc. However you’d like to show your support for Soft Bones, you can do it! If you share on social media, tag Soft Bones so we can share with you and spread the word about HPP.

Shareable Fact Cards

Share these fact cards on your social media account to raise awareness. Click on the image of choice. Right-click to ‘save image as’ to your computer, or hold for 2 seconds to ‘save photo’ to mobile device. Together we can share facts about this rare disease.

'WE ARE HPP' Shareable Posts

Share these special messages on your social media account to raise awareness. Click on the image of choice. Right-click to ‘save image as’ to your computer, or hold for 2 seconds to ‘save photo’ to mobile device. Together we can spread awareness on World HPP Day.