World HPP Day – 2022

World HPP Day – 2022

October 30, 2022 – “HPP on the Move”

This year’s theme for World HPP Day is HPP ON THE MOVE – a celebration of movement both physically and metaphorically.

Whether you choose to get moving by participating in the Cannonball 5k or another form of physical activity – or you start your own movement by educating others – the goal is to create momentum around awareness of hypophosphatasia around the world.

Let’s Move!

Use the following hashtags in your post: #WorldHPPDay #SoftBonesHPP #HPPaware #Cannonball5k

World HPP Day is our chance as a community to spread awareness for this rare bone disease and bring everyone together. From patients living with HPP, to caregivers, families, loved ones, researchers and doctors, we want everyone to get involved! We are stronger together, and when we move, we move as one! There are many ways to spread awareness and we hope that one of these ways works for you.
Let’s get moving!

How to Get Involved

Get Moving on Social Media

Add frames to your profile picture, change your cover photo, and share HPP fact cards on social media.

Click for Instructions

Reach out to Local Media

Let’s all be heard in the media! Download this guide to learn how you can share your story.

Join the Cannonball 5k

Join us as we come together as a community to raise global awareness of HPP.

Social Media Downloads

*Click on the buttons to access each one, right click on the image and save the image*

Support Our Cause!

Order World HPP Day Swag

Visit the Soft Bones store to order your swag and show your support for the HPP Community!

Support Wreath Fundraiser

Shop now and support Soft Bones! Enter campaign code: 299426 for free shipping.

Donate to Soft Bones

Make a donation to Soft Bones Inc. or start a Facebook fundraiser anytime during October.

Thank you to our sponsors

Mail Address (P.O Box)
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

Organization

Programs

Community

Office Address (Location for meetings and events)
1719 NJ-10, Suite 315
Parsippany, NJ 07054

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