HPP AND ME
HPP AND ME is our online community forum that connects patients, families and caregivers. Find answers to your questions, share stories and meet others, all in a secure environment.
Our message boards make it easy to chat with others, search for answers to specific questions, or browse information by topic to learn more about HPP.
United in HPP Experience
HPP AND ME has forums for multiple countries.
Including the United States, France, China, New Zealand, and Belgium.
Soft Bones hosts regular HPP AND ME Live Zoom Chats. These chats are open to all our members regardless of where you live or your diagnosis status. Meet the faces behind the names, talk about HPP or life in general, and connect with others!
Find Answers to
All Your HPP Questions
HPP AND ME has a wide selection of channels so you can discuss every facet of life with hypophosphatasia. The three top used forums are as follows.
- Living With HPP
- Disease Management
- General Questions
Region Forums
Because HPP is so rare, it is hard to find people to identify with locally. On HPP AND ME, we have specific region forums to converse with others nearer to you. To learn more about the Region Lead Program and to identify your region, click HERE.
Three Steps to get Started:
1. Turn on forum notifications. Here is a step-by-step guide.
2. Introduce Yourself on our “New to HPP AND ME?—Introduce Yourself” topic thread. Get to know other users by commenting on their posts, too!
3. Check out the “Announcements” section. This is where Soft Bones, Inc. staff and Region Leads post news relevant to all forum participants. Be sure to turn on your notifications so you don’t miss an announcement!
Additionally, User Tips/Questions is where we post step-by-step instructions on how to best use the community. Check in here if you have questions about how to do something or contact us if you need additional help.
