How to Talk to Your Family About Your HPP Diagnosis

Denise Goodbar September 21, 2022

0 Comments

To read the publication please click on the link below.

Categories: Soft Bones Publications

Tags: anxiety, conversation guide, Diagnosis, Genetics

Ryan’s Story

We are all told to stay away from “Dr. Google”; however, in the case of our son’s diagnosis of Hypophosphatasia (HPP), we were glad that…

Taralyn Naslonski November 6, 2020

0 Comments

Patient of the Month- Cass S.

If you would like to make a donation to Soft Bones in honor of Cass, please click the button below! Donate Here Cass with her…

Margaret Robb December 30, 2023

0 Comments

Patient of the Month- Alana S.

If you would like to donate to Soft Bones in honor of Alana, please click the button below! Donate Here I was born with several…

Margaret Robb October 31, 2024

0 Comments

General HPP Brochure

To read the publication please click on the link below. View Resource

softbones October 20, 2020

0 Comments

HPP Glossary of Terms

To read the publication please click on the link below. View Resource

softbones October 20, 2020

0 Comments

Responses

You must be logged in to post a comment.

Mail Address (P.O Box)
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

Organization

Programs

Community

Office Address (Location for meetings and events)
1719 NJ-10, Suite 315
Parsippany, NJ 07054

Follow Us on Social Media!

Disclaimer: This Website is owned by Soft Bones, Inc. All materials contained in this Website (the “Materials”) are either owned by or licensed to us and are protected by intellectual property and other laws. We retain all proprietary rights to the Materials. This Website is copyrighted. All rights are reserved. Except as expressly authorized by us, any use, copy, reproduction, display, performance, modification or retransmission of the Materials is strictly prohibited.

Related Articles

Responses