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Calling all Teen Advisory Council (TAC) teens! We are so excited to kick off our first Teen Advisory Council meeting of 2025 with a speaker!…
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Soft Bones will host an HPP AND ME Zoom Tutorial on February 11, 2025, at 2 PM Eastern. Come learn the tips and tricks on… |
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Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on… |
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2 events,We are one month away from Rare Disease Day! Rare disease affects 1 in 10 Americans. Did you know many great organizations are supporting those…
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Come celebrate Rare Disease Day and Show Your Stripes with us at our Virtual Rare Disease Day HPP Zoom Chat! Join us on February 28,… |
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