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National Patient Meeting 2023

Phoenix, Arizona

Join us for our 2023 National Patient Meeting happening on February 17-18 in Phoenix, Arizona! This important event will bring the HPP community together to…

Rare Disease Day 2023

Online

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. SHARE YOUR COLOURS

HPP AND ME Tutorial #1

Online

Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 1: (1:00 p.m.)  https://us06web.zoom.us/meeting/register/tZUvfuyhqT4sHtVfikHsMID5seFKxt_6sPG5  

HPP AND ME Tutorial #2

Online

  Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 2: (7:00 p.m.) https://us06web.zoom.us/meeting/register/tZwof-ugqzoiHdygHj7Wi4DKOmB9PADf8Q5F  

HPP TeleECHO: ALPL Variant Database

Online

Join our HPP TeleECHO: ALPL Variant Database on March 10th, at 12PM EST, presented by Dr. Wolfgang Hogler. For more information, contact us at ECHO@SoftBones.org…

HPP AND ME Zoom Meeting

Online

  Join the HPP AND ME community members in a live chat via  Zoom on Wednesday, April 12th, at 8:00 p.m. EDT! Come together and…

Unmask HPP Webinar: Genetics and HPP

Online

Register Today For This Informative Webinar. Presenter:  Dmitriy Niyazov, MD Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient…

HPP AND ME Live Zoom Chat

Online

  Join the HPP community in an HPP AND ME live chat on May 4, 2023, at 3:00 p.m. EDT. Meet the faces behind the…

HPP AND ME Zoom Tutorial

Online

Soft Bones will be hosting a HPP AND ME Zoom tutorial on Tuesday, May 9th, at 8:00 p.m. EDT. Learn more about the HPP community,…

Unmask HPP Webinar: Living with HPP

Online

Register Today For This Informative Webinar. Presenter:  Jacqui Kernaghan, PA- C, Preventative Medicine Are you navigating an HPP diagnosis? Whether you’re new to HPP or…