Rare Disease Day 2023
OnlineRaising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. SHARE YOUR COLOURS
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. SHARE YOUR COLOURS
Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 1: (1:00 p.m.) Â https://us06web.zoom.us/meeting/register/tZUvfuyhqT4sHtVfikHsMID5seFKxt_6sPG5
Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 2: (7:00 p.m.) https://us06web.zoom.us/meeting/register/tZwof-ugqzoiHdygHj7Wi4DKOmB9PADf8Q5F
Join our HPP TeleECHO: ALPL Variant Database on March 10th, at 12PM EST, presented by Dr. Wolfgang Hogler. For more information, contact us at ECHO@SoftBones.org…
Join the HPP AND ME community members in a live chat via Zoom on Wednesday, April 12th, at 8:00 p.m. EDT! Come together and…
Register Today For This Informative Webinar. Presenter: Dmitriy Niyazov, MD Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient…
Join in the fun of our virtual Trivia Night, Friday April 21, 2023 7pm to 8:30pm EST. The Teen Advisory Council (TAC) invites you…
Join the HPP community in an HPP AND ME live chat on May 4, 2023, at 3:00 p.m. EDT. Meet the faces behind the…
Soft Bones will be hosting a HPP AND ME Zoom tutorial on Tuesday, May 9th, at 8:00 p.m. EDT. Learn more about the HPP community,…
Register Today For This Informative Webinar. Presenter: Jacqui Kernaghan, PA- C, Preventative Medicine Are you navigating an HPP diagnosis? Whether you’re new to HPP or…
Join in the fun in our virtual Trivia Night Tuesday, May 23, 2023, from 7 pm to 8:30 pm EST. The Teen Advisory Council (TAC)…
Join Soft Bones at our 2023 Scientific Meeting on June 2-4, 2023.