Events

Gain a new perspective on navigating treatment with STRENSIQ!   Join Alexion, AstraZeneca on December 9th at 7:00 PM Eastern for a virtual meeting. Learn…

Register for your spot today! Join us on December 11, 2025, at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…

Register for your spot today! Join us on January 15, 2026, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…

Attention all UK HPP members!   Soft Bones is hosting an HPP AND ME Zoom Chat for all patients, caregivers, and families living in the…

Calling all Teen Advisory Council (TAC) members! Mark your calendars for our first meeting of 2026, scheduled for Monday, February 9, 2026, at 8:00 PM.…

Register for your spot today! Join us on February 17, 2026, at 2 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…

Register for your spot today! Join us on February 19, 2026, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…

Attention all UK HPP members! Soft Bones is hosting an HPP AND ME Zoom Chat for all patients, caregivers, and families living in the UK!…

Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…

Rare Disease Day is just around the corner. Are you ready? This year, getting involved is easier than ever. Visit our Rare Disease Day page…

Calling all HPP members from Alaska, Idaho, Montana, Northern California, Oregon, or Washington?   Join Region Leads, Haley T. & Scarlett P., for a Zoom Chat…

Calling all HPP members from Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, or Tennessee?   Join Region Leads, Blynda K. and Tess O., for…