New Patient Orientation Meeting – August 11, 2025
OnlineCalling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on August 11th at 1 PM…
12 events found.
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STRENSIQ Perspectives – August 20, 2025
OnlineGain a new perspective on treatment! Join Alexion, AstraZeneca on August 20th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Attendees will…
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HPP AND ME Live Zoom Chat – August 28, 2025
OnlineRegister for your spot today! Join us on August 28, 2025, at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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Join Us for an In-Person Southeast Region Meeting – August 30, 2025
Calling all HPP members from Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, and Tennessee. Meet us in Kissimmee, FL! Join Southeast Region…
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Join Us for a Northeast Zoom Chat – September 8, 2025 at 7 PM Eastern
Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia? Join Northeast Region…
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HPP AND ME Live Zoom Chat – September 23, 2025
OnlineRegister for your spot today! Join us on September 23, 2025, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others…
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HPP Empowered: September 24, 2025 at 7:00 PM Eastern
OnlineHave you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…
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17th Annual Golf Classic and 2nd Annual Pickleball Tournament- Day of Play
Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New JerseyRegistration for the 17th Annual Soft Bones Golf Classic and 2nd Annual Pickleball Classic is now closed. If you are attending golf or pickleball, below,…
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Join Us for a In-Person Northeast Region Meeting – October 25, 2025
Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia? Join us…
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Join Us for an In-Person Midwest 1 and Midwest 2 Region Meeting – October 25, 2025
Do you live in Illinois, Indiana, Iowa, Kentucky, Michigan, Minnesota, Ohio, West Virginia, or Wisconsin? Join us in Madison, IN! Join Midwest 1…
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Join Us for an In-Person Southwest Region Meeting – October 25, 2025
Calling all HPP families from Arizona, Hawaii, Nevada, New Mexico, Southern California, and Utah. Meet us in Tempe, AZ! Join Southwest Region Leads…
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Join Us for a In-Person Midwest 1 Region Meeting – October 25, 2025
Do you live in Illinois, Indiana, Iowa, Minnesota, or Wisconsin? Join us in Madison, WI! Region Leads Gerald G. and Jan R. will…