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  • National Patient Meeting 2023

    Phoenix, Arizona

    Join us for our 2023 National Patient Meeting happening on February 17-18 in Phoenix, Arizona! This important event will bring the HPP community together to…

  • Rare Disease Day 2023

    Online

    Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. SHARE YOUR COLOURS

  • HPP AND ME Tutorial #1

    Online

    Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 1: (1:00 p.m.)  https://us06web.zoom.us/meeting/register/tZUvfuyhqT4sHtVfikHsMID5seFKxt_6sPG5  

  • HPP AND ME Tutorial #2

    Online

      Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 2: (7:00 p.m.) https://us06web.zoom.us/meeting/register/tZwof-ugqzoiHdygHj7Wi4DKOmB9PADf8Q5F  

  • HPP TeleECHO: ALPL Variant Database

    Online

    Join our HPP TeleECHO: ALPL Variant Database on March 10th, at 12PM EST, presented by Dr. Wolfgang Hogler. For more information, contact us at ECHO@SoftBones.org…

  • HPP AND ME Zoom Meeting

    Online

      Join the HPP AND ME community members in a live chat via  Zoom on Wednesday, April 12th, at 8:00 p.m. EDT! Come together and…

  • Unmask HPP Webinar: Genetics and HPP

    Online

    Register Today For This Informative Webinar. Presenter:  Dmitriy Niyazov, MD Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient…

  • HPP AND ME Live Zoom Chat

    Online

      Join the HPP community in an HPP AND ME live chat on May 4, 2023, at 3:00 p.m. EDT. Meet the faces behind the…

  • HPP AND ME Zoom Tutorial

    Online

    Soft Bones will be hosting a HPP AND ME Zoom tutorial on Tuesday, May 9th, at 8:00 p.m. EDT. Learn more about the HPP community,…

  • Unmask HPP Webinar: Living with HPP

    Online

    Register Today For This Informative Webinar. Presenter:  Jacqui Kernaghan, PA- C, Preventative Medicine Are you navigating an HPP diagnosis? Whether you’re new to HPP or…