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Rare Disease Day- One Month Away!

We are one month away from Rare Disease Day! Rare disease affects 1 in 10 Americans. Did you know many great organizations are supporting those…

Show Your Stripes – HPP Chat

Come celebrate Rare Disease Day and Show Your Stripes with us at our Virtual Rare Disease Day HPP Zoom Chat! Join us on February 28,…

STRENSIQ Perspectives – March 11, 2025

Online

Gain a new perspective on treatment!   Join Alexion, AstraZeneca on March 11th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Attendees will…

2025 Soft Bones National Patient Meeting – Registration is Now Closed

Great Wolf Lodge (Williamsburg, VA) 549 E Rochambeau Dr, Williamsburg, VA, United States

Registration is now closed for the 2025 Soft Bones National Patient Meeting on July 18th - 19th in Williamsburg, VA. Please contact Patient@SoftBones.org to be…