Events

Attention all UK HPP members! Soft Bones is hosting an HPP AND ME Zoom Chat for all patients, caregivers, and families living in the UK!…

Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…

We are less than one month away from Rare Disease Day, February 28th! Rare diseases affect 1 in 10 Americans, and 72% of them are…

Calling all HPP members from Alaska, Idaho, Montana, Northern California, Oregon, or Washington?   Join Region Leads, Haley T. & Scarlett P., for a Zoom Chat…

🚨 RSVP Needed for TAC Art Session 🚨    Calling all Teen Advisory Council members!   Join us on March 2nd at 8 PM Eastern…

Calling all HPP members from Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, or Tennessee?   Join Region Leads, Blynda K. and Tess O., for…

Registration is now open for the 2026 National Patient Meeting, taking place in Chattanooga, TN. Join us on June 26-27 for an informative gathering where individuals…

Save the Date! ⛳ Get ready to tee it up or dink for a great cause! We’re excited to announce that the 18th Annual Soft…