Register for your spot today! Join us on March 25, 2025, EDT for an HPP AND ME Zoom Chat. Connect with others and share your experiences…

Gain a new perspective on treatment!   Join Alexion, AstraZeneca on March 27th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Attendees will…

Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia?   Meet us…

Calling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on April 14th at 8 PM…

Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…

Do you live in Alabama, Georgia, Florida, Mississippi, North Carolina, South Carolina, or Tennessee?   Join Region Leads Blynda K., Scott G., and Tess O.,…

Do you live in Illinois, Indiana, Iowa, Minnesota, or Wisconsin? Join Midwest 1 Region Lead, Jan R. for a luncheon on Sunday, April 27, 2025,…

Do you live in Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, or Tennessee? Join us in Nashville, TN! Southeast Region Leads, Blynda K., Scott…

Registration for the 3rd Annual Denim and Diamonds is now open!   Get your cowboy boots and dance for a great cause.   There will…

Join us for our 2025 Soft Bones National Patient Meeting on July 18th–July 19th, 2025 in Williamsburg, VA. This important event will bring together HPP community members to…

Save the Date!   Join us for our largest fundraiser of the year on September 29th, 2025!   Date: Monday, September 29th, 2025.  Location: Somerset…