Soft Bones Family, it starts with us
Today, we’re inviting you to join us in supporting the HPP community-raising awareness, providing
education, and ensuring that every person living with Hypophosphatasia feels seen, understood, and supported.
Over the past 16 years, Soft Bones has connected thousands of families, guided individuals toward diagnosis,
helped caregivers find trusted medical information, and built a global network of compassion and knowledge.
Your gift today helps us continue that work – keeping resources free, hosting support groups, educating clinicians,
and expanding research awareness.
Together, we make living with HPP less isolating – and more connected.
Today, we invite you to choose the meaning of your gift.
Whether you’re honoring the 16-year journey of this community…
supporting the families who reach out every day…
or fueling research into the 400+ genetic variants linked to HPP…
your gift creates hope.
To donate without incurring a fee, you can mail a check, pay by Venmo at @Soft-Bones (last four digits 1081), or through Zelle at Info@SoftBones.org. In the memo section, please include your full name and write “Annual Appeal 2025”, or mail a check to:
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
For the 16 years Soft Bones has been advocating for people living with HPP.
For the families living with HPP in all 50 states.
For the 1 in 100,000 babies born with severe forms of HPP.
For the 400+ known ALPL gene variants (488) researchers are working to understand.
Choose your donation amount!
Hope is the strongest weapon, see how it can move galaxies!
