The myHPP App
myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their health while being a valuable partner in research for better HPP treatment and care. With a user-friendly interface, users can track their medications, appointments, injection schedules, insurances, and more. This is a private and secure app where de-identified data will only be shared with researchers and doctors. Join us in taking actionable steps to transform healthcare by downloading the app in the Apple or Google Play Store today!
Take charge of your health and become a partner in HPP research today!
App Features
My Health Report
Research has shown that patients struggle when discussing HPP with doctors. myHPP was developed by patients and physicians in our community to track a variety of symptoms, side effects, injection schedules, and more.
The app will automatically generate a My Health Report that you can print and take with you to doctor appointments. The report summarizes symptoms that you have tracked to show trends and can better help facilitate a productive dialogue with your treating physician.
Trackers
The app is designed to help patients track their progress, which can be helpful during insurance appeals and discussing HPP with doctors. The app also allows you to track medications and dosages as well as doctor’s appointments.
Research
Here at Soft Bones, we see people as partners in research, not subjects. To improve treatment options and care, health data is crucial to capture. Help us identify the needs of patients and families to create evidence-based approaches and uncover new goals for therapies.
Streamline health information all in one place.
Frequently Asked Questions
The Soft Bones myHPP app was designed to unite people who share the desire to better understand hypophosphatasia and who agree to share anonymous data about their symptoms to alter the future of hypophosphatasia treatment. Soft Bones will have access to certain data to help inform research, but does not have access to any personal information.
This app was designed with the patient in mind. Therefore, the more you put into it, the more accurate and helpful your data will be in the short and long run. The data collected will lead to robust research for HPP. The app is intended to be flexible with your user style and to have a more informed conversation with your healthcare team. We recommend that users update their symptoms at least once a month to make sure data stays up to date.
Appy Hour
Soft Bones will host Appy Hours over Zoom for you to learn how to navigate the app. Please visit the Soft Bones calendar for upcoming scheduled Appy Hours. Registration is required. We hope to see you there!
View our calendar here.
Genius Bar
Come visit our “Genius Bar Forum” located on our HPP AND ME platform. Get personalized support using the myHPP app. With technical support from myHPP users and the creators of the app, we hope to provide the necessary information and resources to optimize your app usage.
Join here.
